Overview

Project status: In progress

This project explores how and if members of the community understand and act upon their legal right to participate in decisions about medical treatment for themselves or for their loved ones at the end of life. Little is currently known about whether individuals know the law, or are able to exercise their legal rights to be involved in the process of making decisions about treatment.

This research will enhance patient and family decision-making through a better understanding of legal rights, powers and duties and will improve the experiences of patients and families at the end of life.

Key findings

To assist resource authors, we have developed an A3 poster outlining our key findings in relation to community resources about the law at end of life.

Read our recommendations (PDF file, 264.06 KB)

Grantor
  • ARC Linkage Project 2014-2017 LP140100883
  • The Cancer Council NSW
  • Cancer Council Victoria
  • The Cancer Council Queensland
Amount
  • Australian Research Council - $321,527
  • The Cancer Council NSW - $33,500
  • Cancer Council Victoria - $33,500
  • The Cancer Council Queensland - $33,500
Research leader
Research team
QUT External collaborators

Investigators

  • Associate Professor Cheryl Tilse (UQ)
  • Professor Jill Wilson (UQ)

Partner investigators

  • Doctor Deborah Lawson (Cancer Council Victoria)
  • Professor Jeffrey Dunn (Cancer Council Queensland)
  • Ms Angela Pearce (Cancer Council New South Wales)
Organisational unit
Lead unit Other units
Start date
1 July 2014
End date
30 June 2017
Research areas
Keywords
health and medical law, end of life decision-making, community knowledge of law
 

Partnerships

Cancer Council Victoria

Since their establishment in 1937, Cancer Council Victoria has developed an international reputation for innovative work in cancer research, prevention and support. As an independent, not-for-profit organisation, they play a leading role in reducing the impact of all cancers on all people.

Cancer Council NSW

Cancer Council NSW is an independent charity and 96% community funded. Their unique combination of local program delivery, community engagement and national influence enables everyone who cares about cancer to make the biggest possible difference.

Cancer Council Queensland

Established in 1961, the Cancer Council Queensland employs over 250 staff statewide, and relies on support from more than 2,500 registered volunteers. Cancer Council Queensland is a member of Cancer Council Australia and is affiliated with the International Union Against Cancer (UICC).

Participate in an interview

We're looking for terminally ill patients and family members aged 18 and above who are involved in medical end-of-life decision-making to complete an interview.

Why are we interviewing people?

We're aiming to improve understanding of medical decision-making by people with a terminal illness and their decision makers, including what decision-making practices you use and what support would assist you to make decisions.

This research has been approved by the QUT University Human Research Ethics Committee, the University of Queensland Behavioural and Social Sciences Ethical Review Committee, the Cancer Council Victoria Human Research Ethics Committee and Cancer Council NSW Ethics Committee.

Who can participate?

We would like to interview you if you are in Queensland, Victoria or New South Wales and are either:

  • an adult patient with a terminal illness who is involved in your own medical decision-making
  • an adult family member of an adult with a terminal illness who has witnessed or been involved in medical decision-making.

What's involved?

You will take part in a face-to-face, telephone or Skype interview at a time and location convenient for you. The interview will last for about an hour. To minimise any possible distress caused by talking about terminal illness and end of life, information on how to access counselling services will be offered.

How do I participate?

If you'd like to be interviewed, contact Michele Ferguson by email: michele.ferguson@qut.edu.au or phone +61 7 3365 2505.

Become a participant

We're looking for terminally ill patients and family members aged 18 and above who are involved in medical end-of-life decision-making to complete an interview.