25th June 2017
Researchers from the Australian Centre for Health Law Research (ACHLR) and the QUT Faculty of Law are part of a successful project team awarded $480,000 to explore the ethical, legal and social implications of the delivery of genomic medicine in Queensland.
The project is one of five workstream capability projects and four demonstration projects awarded a total of $4.8 million by Queensland Health as part of the Queensland Genomics Health Alliance (QGHA).
Over the next 18 months, the project team will work together on issues such as:
- the challenges relating to consent to genomic medicine
- privacy issues associated with the collection, use and storage of genomic data
- how to justly allocate access to genomic medicine.
The trans-disciplinary project team, led by Chief Investigators Dr Nic Waddell (QIMR Berghofer Medical Research Institute), Professor Belinda Bennett (ACHLR), and Professor John Devereux (The University of Queensland) includes eight legal academics from ACHLR and the QUT Faculty of Law (Dr Fiona McDonald, Associate Professor Tina Cockburn, Professor Des Butler, Professor Matthew Rimmer, Dr Angela Daly, Dr Andrew McGee, Dr Malcolm Smith, and Dr Shih-Ning Then).
The project team will also collaborate with researchers, clinicians and specialists on other workstream capability project teams investigating the impact of genomics in health care including: genomic information management; genomic testing; educating the clinical workforce in genomics; and evaluating the use of clinical genomics in the Queensland health system.
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